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It’s officially travel season.

That magical time when wedding planners are knee-deep in flower arrangements and signature cocktail names (and I’m deciding between a million different things on a registry with a similar mocktail). Kids (and parents) are counting down the days until school lets out (because who doesn’t want an unhinged little person screaming at you all day for two whole months). Families are mapping out road trips (because this is better than being in a house with the unhinged little person, right), and sales companies are locking in their annual conferences during the Windy City’s most charming stretch of weather (good luck finding street parking).

And then — there are people within our community who get to throw on another layer of unwanted happenstances.

The ones who also want to hop on a plane, take a road trip, or plan something spontaneous. But first, we have to do a little rain dance, hop on one foot while holding the other at a 90-degree angle, say three affirmations, pack like a scout, and still cross our fingers that we won’t get hit with symptoms halfway through TSA.

Traveling with MS is an adventure before the adventure. But I’ve learned that it can be done — with some planning, a little humor, and a lot of grace. Here's how I’ve made it work, what I’ve learned from the setbacks, and why I keep exploring anyway. And I didn’t even lose the child in tow.

The emotional side of traveling with MS

Let me tell you something real: before I even zip up a suitcase, I’m already feeling a mix of joy, nerves, and straight-up survival strategy.

Traveling with MS means checking more than just a boarding pass — I’m checking in with my body, my energy, and these days especially, my faith. The emotional side of travel hits different when your body can shift gears on you without notice. One day you’re climbing steps in Santorini, and the next you’re curled up in a hotel bed canceling plans because your legs tapped out.

It’s frustrating. It’s humbling. And if I’m being honest, it can feel a little isolating.

People don’t always see the invisible parts. The stiffness. The brain fog. The overwhelming fatigue that has nothing to do with jet lag. I used to push myself to keep up, to prove I was “fine” and I didn’t need to rest or take a break, until I realized the only person I needed to keep up with was me.

Now? I travel slower, more intentionally. I give myself permission to say “no,” to pause, to rest. And y’all, when I learned to do that without guilt – ultimate game-changer. I used this same thought process in other places in my life as well.

It’s also an emotional win when things do go smoothly. When I’ve prepped well, hydrated like a champ (get those electrolytes), and get through TSA without a single flare or foot cramp? I want to throw myself a party at gate B12 (see what I did there). But even when things go sideways — and trust, they do — I try to meet myself with grace.

I’ve cried in airports. I’ve canceled trips. But I’ve also sat quietly on a beach with my daughter, just taking in the waves. I’ve found joy in doing “less,” and discovered that sometimes, that’s more than enough.

So yes, the emotional rollercoaster is real. But so is the strength, the softness, and the power in giving yourself space to explore the world your way.

And that, my friend, is the kind of travel glow that no filter can match.

A few helpful tips for traveling with MS

• Book direct flights when possible. Less layovers equals less stress on your body.
• Request wheelchair or transport assistance in advance — even if you don’t “look” like you need it. Accessibility is your right, not a privilege.
• Build in rest days. Don’t overbook your itinerary. Think: one activity, one nap, one (or more) snack(s). Repeat.
• Hydrate like it’s your job. Especially on travel days — water helps fight fatigue, swelling, and brain fog.
• Pack smart: bring a portable fan, compression socks, neck pillow, snacks, and all meds (in original containers) in your carry-on. Clear anything that is not a part of your regular routine with your healthcare provider.
• Call ahead to hotels or Airbnb hosts to confirm elevator access, bathroom setup, quiet rooms, and anything else you may need. Don’t be shy.
• Dress in layers. Temperature sensitivity is real. Keep cooling towels or a foldable hat in your bag if heat triggers symptoms. Blankets and heat packs if you will need to stay warm.
• Use travel apps such as Wheelmap (for accessible places), MyTherapy (med reminders), and TripIt (to keep plans organized).
• Listen to your body. Sit when you need to. Skip the tour. Order room service. You are still living your best life.
• Give yourself grace. Every trip doesn’t have to be picture-perfect. The memories are in the moments, not the milestones.

Whether it’s a solo getaway, a family trip, or just a weekend escape, traveling with MS doesn’t have to be perfect to be powerful. You deserve adventure, joy, and rest — on your terms.

Now go make memories — and maybe throw in that rain dance, just in case.